Monday, November 11, 2013

Breakthrough!



November 11, 2013

The above video was the last video I had of Bella and I "playing" prior to her total blindness.  As already noted, she obviously has just not been the same since.  I have tried numerous times over the past few weeks to get her to play and/or engage with me on this level ... and nothing.  Over and over ... nothing.  She turns her head away and eventually will stagger up from her sedentary position and move away from me.  For the record, I don't push too hard as I don't want to stress her out, but I try frequently.

Low and behold ... yesterday morning, I saw a flicker of Bella's true spirit when she actually engaged and played with me ... in the exact same manner as the above video, only not quite as intense.  Call me crazy, but I was overcome with emotion!  I played with her until she wouldn't play anymore ... a good solid 3-4 minutes ... all the while tears of joy running down my cheeks :)

What a wonderful breakthrough!

Thursday, November 7, 2013

What is SARDS? Unfortunately, it entails more than just going blind ...

Most Recent Pic of Bella!

November 5, 2013

So, I feel a little silly in that I realized after my last post ... I wrote about what I took away from the vet visit when Bella was diagnosed and that I would give more information about SARDS, but I didn't really explain what SARDS is.  Doh!  Can you tell I'm new to blogging?

What is SARDS?  (Most of the below is directly from "Living With Blind Dogs" by Caroline Levin)

The first cases were diagnosed in the 1980's.  It involves a deterioration of the rods and cones and is a bilateral disease (affects both eyes).  Owners of dogs with SARDS report that their dogs seemed to go blind suddenly or overnight (Bella had early symptoms of vision loss, but total blindness happened overnight).  There is very little warning and little time for the dog to adjust to this sudden change.

It frequently affects middle-age females in the age range of six to ten years (Bella will be 8 in January).  It is not limited to specific breeds and usually results in complete and total blindness.  While it is not physically painful, many owners report concurrent health problems such as excessive thirst, hunger, weight gain, insomnia, confusion, seizures, muscle weakness (rear leg weakness, incontinence or cardiac problems), panting, pacing, calcium deposits, skin and coat changes, hearing loss, and lethargy.  These are all symptoms of excess cortisol production (the natural steroid hormone produced by the adrenal glands to soothe irritation).  As of now, Bella is exhibiting confusion, rear leg weakness, shaking, skin and coat changes, hearing issues (not sure that it's loss, but she struggles to figure out where sound is coming from and will sometimes go the wrong direction when called) and as I  mentioned in my previous blog, lethargy is a major issue. 

The cause of SARDS is still unproven and assumed to be a non-genetic condition (*note:  though Bella's mother did not have SARDS, she did have Cushing's disease which as you will read shortly is often related to SARDS).  Researchers describe the actual mechanism of degeneration as apoptosis or programmed cell death.  Cellular damage occurs for a variety of reasons including damage to the DNA material or to the membrane, oxidative stress (free radical damage), exposure to radiation, noxious chemicals, or improper nutrition.  When the body detects such damage to a cell, the hormone cortisol crosses the cell membrane and initiates the programmed, self-destruct message. 

Therefore, we must question why dogs produce excess cortisol.  The most well-known reason is a tumor of the pituitary or adrenal glands (Cushing's disease).  Another reason is chronic stress.

Behavioral symptoms of SARDS include hesitancy to jump, failure to judge distance, and bumping into objects.  High cortisol levels are also known to damage brain-cell function.  This can cause symptoms that might be mistaken for behavioral problems such as depression, aggression, fear and confusion.  Owners may become frustrated with SARDS dogs.  The dog may make poor, slow progress.  Excess cortisol hampers these dogs in ways that other blind dogs are not.

In some cases, signs of excess cortisol precede or accompany the vision loss but later dissipate (hopeful that this will be the case with Bella).  In other cases, signs of excess cortisol production continue or worsen.  This scenario may lead to additional health problems.

Tests most commonly performed to evaluate cortisol production are those used to diagnose Cushing's disease - again, a condition in which a tumor grows on the pituitary or adrenal glands.  When these blood tests are performed on SARDS dogs, the results can vary.  Sometimes the results come back as normal, borderline or inconclusive.  At other times the tests are positive for Cushing's disease (a tumor).  Occasionally, the tests are initially negative, but indicate a tumor at a later date.  As I also mentioned in the first blog, they did test Bella for Cushing's and it was negative.  I try to remain optimistic about the "negative" result, however, one of the symptoms that Bella's mother had from Cushing's were tiny little growths on her body ... kind of like a skin tag at first, but then they would grow and become quite noticeable and unpleasing to the eye.  It saddens me to say that Bella has now developed several of these (all currently quite small and covered by her hair).  It's concerning.  I know that she will continue to be tested for Cushing's disease periodically and I just have to continue to hope and pray for the best :)

Signing off ... but I'll leave you with some video of Bella going down my front porch steps.  I've been re-training her, and I'm quite proud of her recent progress if I do say so myself!










Friday, November 1, 2013

Concerns prompting me to start a Blog ... and some back story.







November 1, 2013

Meet my sweet Bella!  This is one of my all-time favorite pictures of her!  I happened to catch her in the middle of a yawn :)  I post this picture before every Cincinnati Bengals football game because, well, it's awesome!

Bella was diagnosed with SARDS (Sudden Acute Retinal Degeneration Syndrome) a few months ago.  I began noticing that she was bumping into things and not able to follow or see toys that I was throwing for her.  After a scary fall down the stairs, I decided to take her to the vet as it was obvious she was having trouble seeing.  I, however, was not at all prepared for her diagnosis.  Basically, what I took away from the vet visit was that she was 100% blind, it is not reversible and there is no cure.  However, she is and will not be in any pain and can live a long, healthy life.  It is also related to Cushing's Disease (which, frighteningly, Bella's mother - my mom's dog - was diagnosed with and eventually led to her passing in December 2012).  They tested Bella for Cushing's and she was negative.  I was told to not move any furniture in my home and that we would be able to work together to get her though this.  I was devastated ... crying, hysterical, distraught.  The vet said it's typically harder on the owners than the actual dogs.  Again, this is what I took away from that vet visit. 

I'm going to give you some more back story and discuss what has happened since that first diagnosis, but I do want to stop here and say that what prompted me to start this blog is two-fold:  1)  Bella has taken a turn for the worse and it's so much more difficult and heart wrenching than I ever could have imagined and 2)  Upon LOTS of additional research ... I realize that there is so much more out there in relation to SARDS that is unknown ... if this blog can help one owner know our story and assist in their own ... then I will have done what I am setting out to do.

Now, for some back story:

I came home from the vet that day and was understandably upset.  I posted about it on Facebook and received a lot of comments of encouragement and stories of other dogs that were blind and eventually got back to being a normal dog ... just one that couldn't see.  I was comforted in knowing and believing that me and Bella were going to be alright!  I don't know if any of those stories were about dogs with SARDS (and believe me, I pray and hope that some were!) but I have since learned that there is a big difference in the reactions and rehabilitation of dogs that go blind and dogs that go blind due to SARDS. 

What I didn't know at the time of her diagnosis, is that she hadn't lost complete vision.  I actually thought my vet was a little crazy.  Even though I was told that she was 100% blind, it was quite obvious that she could still see people (evidenced by her sprinting away from me four buildings down to greet a non-impressed neighbor just getting home from work and trying to get in their house!).  I know her other senses are supposed to be more heightened, but really?  She also still jumped up and down on my couches and used the stairs to get up and down on the bed without any problems.  She would see people and other dogs outside of my living room window (as she LOVES to prop herself up on the couch and just stare out).  Granted, she still had issues bumping into things here and there, not being able to retrieve thrown toys and refused to go down the basement stairs. 

About two weeks ago on a Monday morning, I was aware immediately that Bella was completely blind.  It was so scary.  She was FINE when we went to bed on Sunday.  Everything about my little Bella changed overnight.

She was and still is bumping into everything in the house ... she'll miss the opening between walls ever so slightly, she'll misjudge where a chair is placed, etc.  I have been told and also read that they do typically adjust (and it HAS only been a couple of weeks), but it's upsetting.  She will still jump up on the couch by the window to "look out" which, by the way, I find so intriguing but she can't seem to muster enough confidence to jump on the one I usually sit on ... I say "up" and she puts her two front paws up on the couch and I lift her up.  If she is by me, she MUST be right up beside me ... there's no space between us ever now if she has anything to say about it ... and I'm fine with that because I know it comforts her.  She can no longer use the stairs to get on the bed so I lift her up there as well.  I also get her down from couches and the bed now, too, as I am terrified of her breaking a leg by misjudging the distance when she jumps.

Perhaps the most disturbing and depressing part of all of this for me (and you know what, I actually believe this IS harder on Bella than me ... I mean I can't imagine going blind overnight and then not being able to communicate with anyone about what has happened or why it has happened and then just go on day to day depending so much on others) is the lethargy associated with it.   Bella literally wakes up in the morning and we go outside for her to have a quick bathroom break (I get up around 5am so a walk by myself in the dark with her and the difficulties that go with walking a blind dog is not something I want to do at that early hour ... it's a safety thing).  She then comes in, eats, goes to her dog bed (which she rarely used up until now) and sleeps until I take her for her first morning walk.  She will not play, she will not move.  Sometimes, I have to physically pick her up and take her to the front door to get her up and moving for her walk.  The walk is trying.

I am so glad a friend of mine gave me the book, "Living with Blind Dogs" as it has been such a huge resource for helping me with Bella, educating me on SARDS and how to train a dog with SARDS different from other blind dogs ... so gives me necessary knowledge to cater to Bella.  Like, the walks.

A short walk that would typically take roughly 5 minutes down and back is a 20 minute ordeal (on a good day).  She, obviously, is terrified.  We're taking it slow and tips from the book are helpful.  I take treats with me and am trying to teach her "stop" when there's an obstacle, "step" when there's a variation in height between the sidewalk and grass, "s-l-o-w" when she gets a little too eager (i.e. wanting to go into the street).  She isn't eager often though.  I don't mind re-training her with these new things, but I have to admit, it can be frustrating at times ... and I'm sure that goes for her too!  Anyone who knows me knows that patience is something I am not good at ... so this is quite a learning curve for me!  It gets me emotional at times, but I'm learning from the book I'm reading that I must stay calm and encouraging for Bella ... when it gets to me, I need to excuse myself and not let Bella know that I'm upset, etc.  Logical ... but really difficult to put into practice.  She seems to be picking it up slowly ... so that is refreshing :)

She then comes inside and goes either back to her doggie bed, gets on the couch with me or sits at my feet if I'm working in the kitchen (I work from home, which, under the circumstances is the best case scenario for her!).  She then sleeps again ... snores and sometimes dreams.  She will not play, she will not move.  I then take her for her afternoon walk ... same regimen, similar results.  We come in and she sleeps again ... snores and sometimes dreams.  After work, I try to play with her or do anything to get her moving ... these days if she wags her tail, I am beyond elated!  It doesn't work.  We do the evening walk and go to bed.  This is how it goes these days.

Other things I want to talk about in this blog and will make note of now are (what's to come and a reminder to myself to discuss):

She's having trouble walking
Not drinking water
More info on SARDS itself
Weight gain, Thirst/Hunger
Natural Food
Her Other Senses
Horrible blogs that I've read (both helpful and disturbing)
My Hopes and Fears
Do dogs get depressed?
Coddling

For now, I need to sign-off.  It's about time for a walk.  I do want to say though ... right before I started this entry, she was actually as lively as I've seen her in quite some time as she was chewing on a bone I bought her yesterday ... tail wagging and all.  Made my day.

*Maybe she knew I was writing about her :)